Being Disabled: Notes on a Pandemic

{This series is based on my personal experiences re. living with disability, in my case Chiari & Intracranial Hypertension with Migraine & assorted comorbid unpleasantness, that has kept me housebound for several years.} Disabled folk are used to being ignored. We are perceived by most employers, many of our past or present colleagues and even… Continue reading Being Disabled: Notes on a Pandemic

Being Disabled: Success, Failure and The Lies We Tell Ourselves

{This series is based on my personal experiences re. living with disability, in my case Chiari & Intracranial Hypertension with Migraine & assorted comorbid unpleasantness, that has kept me housebound for several years.} One of the dubious truths we pass on to our children as we try to guide them into becoming happy, fulfilled adults… Continue reading Being Disabled: Success, Failure and The Lies We Tell Ourselves

Being Disabled – Why the D Word Matters

My maternal grandmother was a bold, stubborn, hilarious woman. She loved her family passionately and voiced her opinions loudly; we miss her very much. About 16 years ago, my beloved auntie became very unwell with TB. She was hospitalised and spent months convalescing. I was close to both my nan and my aunt (they lived… Continue reading Being Disabled – Why the D Word Matters

My Next Neurosurgery – Decompression

Sometimes when you've been waiting for something for quite a long time, it can come as a shock to the system when all of a sudden, D-day is hurtling towards you at speed. That's certainly how I feel about my second brain surgery. I received a call today from my Neurosurgeon's registrar, offering me a… Continue reading My Next Neurosurgery – Decompression

Brain Surgery: My VP Shunt

{This post includes a photo of a stapled surgical incision} When I was preparing myself for my VP (Ventricular Peritoneal) shunt surgery, I had a look via Google for any articles or blog posts that would give me some idea of what to expect. I was able to locate basic information on the surgery itself… Continue reading Brain Surgery: My VP Shunt

Chronic Life: A Moment of GratitudeĀ 

Gratitude is, in my opinion, something that can only be genuinely felt when it comes from within. No amount of 'it could be worse' or 'you should be grateful that..' comments from other people will make me feel it. In fact, such comments from people who do not live with chronic daily pain are more… Continue reading Chronic Life: A Moment of GratitudeĀ 

What My Migraine Was Hiding

{As ever with the Chronic Life series, I must point out that I'm not a doctor or medical expert, just a patient like any other. My thoughts and feelings are just that; medical advice should be sought from your specialist.} Getting new additional diagnoses when you've lived with Migraine for most of your life is… Continue reading What My Migraine Was Hiding