Like many other spoonies around the world, I have attended a vast number of medical appointments in my life so far. But it was only before my first meeting with a particular Neurosurgeon recently (to make a plan re. my Chiari Malformation) that I consciously paused to consider what I needed to do to make… Continue reading Chronic Life: Making Medical Appointments Work for You
I was 9 years old when I had my first Migraine. By my late teens I had Chronic Migraine (15 days of head pain per month with at least 8 of those being full blown Migraine is the current definition for Chronic Migraine; sadly my migraines have always been significantly more frequent than this). I've… Continue reading Chronic Life: Getting a New Diagnosis
This post outlines my thoughts and experience re. medication delivery methods as a life long Chronic Migraine warrior; I'm not a medical expert! Obviously, all concerns and ideas re. medication should be discussed with your GP/Specialist. A few members of my Migraine/Chronic Pain Warriors FB group are relatively new to the Chronic Life, so with… Continue reading Tablets, Sprays and Injections – Oh My!
Living with debilitating daily pain is one of those things that's difficult to fully grasp if you or a person you love hasn't experienced it. That's not to say that 'no one understands'; I know people who are sufficiently empathetic that they're able to put themselves in my position and gain some insight into what… Continue reading Chronic Life: The Trouble with ‘Thinking Positive’
As anybody living with a debilitating chronic illness can tell you, missing the really special or important moments is a terrible aspect of Chronic Life. It's not just our moments that pass us by either, but the moments of people we care about. Today my daughter went to her little cousin's 2nd birthday party.… Continue reading Chronic Pain and the Erosion of Self 5: Missing Special Moments
I dithered for a while as to whether to include this topic in the 'Chronic Pain and The Erosion of Self' series or give it a different title. Online friendships are something I have gained through chronic illness rather than some that I have lost; that said, they are something I've gained ONLY because my… Continue reading Chronic Pain and The Erosion of Self 4: Online Friendships
My relationships with the people in my life come in all shapes and sizes and every single one has been impacted by my chronic illness. Being my friend isn't easy, but that's hardly surprising since Chronic Life is challenging in many ways. The hard fact of the matter is that some friendships don't survive hard… Continue reading Chronic Pain and the Erosion of Self: Friendships