Being Disabled: Notes on a Pandemic

{This series is based on my personal experiences re. living with disability, in my case Chiari & Intracranial Hypertension with Migraine & assorted comorbid unpleasantness, that has kept me housebound for several years.} Disabled folk are used to being ignored. We are perceived by most employers, many of our past or present colleagues and even… Continue reading Being Disabled: Notes on a Pandemic

Being Disabled – Why the D Word Matters

My maternal grandmother was a bold, stubborn, hilarious woman. She loved her family passionately and voiced her opinions loudly; we miss her very much. About 16 years ago, my beloved auntie became very unwell with TB. She was hospitalised and spent months convalescing. I was close to both my nan and my aunt (they lived… Continue reading Being Disabled – Why the D Word Matters

My Next Neurosurgery – Decompression

Sometimes when you've been waiting for something for quite a long time, it can come as a shock to the system when all of a sudden, D-day is hurtling towards you at speed. That's certainly how I feel about my second brain surgery. I received a call today from my Neurosurgeon's registrar, offering me a… Continue reading My Next Neurosurgery – Decompression

Lottie London Lip Kit

Since I had brain surgery in late January, I've been even more housebound than usual. I'm managed two short outings with my family since then and on both occasions I test drove this Lip Kit in the shade #TBT from Lottie London cosmetics. It has been waiting patiently for it's moment for quite some time… Continue reading Lottie London Lip Kit

Chronic Life: A Moment of Gratitude 

Gratitude is, in my opinion, something that can only be genuinely felt when it comes from within. No amount of 'it could be worse' or 'you should be grateful that..' comments from other people will make me feel it. In fact, such comments from people who do not live with chronic daily pain are more… Continue reading Chronic Life: A Moment of Gratitude¬†